What do you expect?

There are some common expectations that come along with being a parent. It is usually assumed that you will bring baby home, they will be educated, make friends, grow up and go on to higher education or training, work, family, and live on their own. Obviously there are some variations on that theme, some people … More What do you expect?

Open Spaces

He bounded up to us, and greeted my son. I was taken off guard. I didn’t know him, but my son did.  I was an observer. It was all out of my league and over my head. They shared a passion for this activity, for what it meant and the possibilities it held. I stepped … More Open Spaces

It’s not my kid.

  There are so many good people in the world, teachers, therapists, doctors, social workers, who go above and beyond to help families get their needs met. Then there was this guy. He glowered above me. “I know what these kids need! Are you questioning my expertise?” Well, yeah. Besides, I wasn’t talking about “these” … More It’s not my kid.

Ready to Raise Hell?

  I believe that if people with disabilities and their families want to achieve true equity, we have to stand up and make ourselves heard. I was happy to see that the NPR series “Take a Number” featured my beloved Partners in Policymaking program. Joe Shaprio writes; “At a graduation ceremony in a hotel ballroom outside Minneapolis, 28 … More Ready to Raise Hell?

Growth, Opportunity, and I may be a little too excited.

Those who know me know I am a huge advocate for the Partners in Policymaking program that teaches advocacy skills to people with developmental disabilities and their families.  Our state Developmental Disabilities Council offers the program every other year, and this year I had the pleasure of speaking and helping out with some of their … More Growth, Opportunity, and I may be a little too excited.

Some people are not given much opportunity to make friends or be in a romantic relationship. The Cost of Loneliness  Project  identifies  loneliness as rapidly emerging  to become the greatest public health crisis of our time. When thinking about supporting people with intellectual  and developmental disabilities,  there is a  need to ensure that support includes … More

New Research Suggests Social Issues are Down to Neurotypicals more than Autistics

Originally posted on Intersectional Neurodiversity:
Picture by Joan M. Mas Autism is seen, in popular representations, largely as a social and communication disorder. Formerly framed as stemming from an autistic lack of a “social instinct”, the current dominant idea is that something is deficient or missing in autistic social cognition. Often referred to as a cognitive…