As a parent, I often feel a disconnect between who my children actually are and the paper representation that floats from desk to desk in the world of human services. The one-dimensional client feels very divorced from the many roles my children occupy of son, brother, friend, neighbor, volunteer, artist, and so on. All people, regardless of disability, exist in the greater context of family, community and culture, yet these other attributes are oft ignored in the provision of services.Read More Transforming the Conversation
As our family prepares to start another school year I am excited and trepidatious at the same time. I wonder if this will be one of the “good” school years or one with 15 IEP meetings. I started thinking about our families who have children with significant disabilities and I realize that I really wanted to […]Read More Dear Parent, There’s Three Things I Want You to Know.
I came across a blog post on Facebook titled the Forgotten End of Autism. The writer is the sibling of a young man who she describes as having some serious challenges around behavior and self-care. She writes; “The forgotten side of the spectrum falls to the “low-functioning” children; the ones who cannot feed themselves without making a mess, […]Read More You’re not forgotten, I think about you every day.
I always appreciate information presented visually and ErinHuman.com has some excellent information on neurodiversity and also this info graphic on the medical vs. social model of disability. Check it out! Source: Disability 101: Medical Model vs Social ModelRead More Disability 101: Medical Model vs Social Model
I love language. I love the power words have on people. To speak to someone in kindness, to pour out love on someone, to encourage them. It can be magical. I believe the words we speak have the ability to shape us. Although I am very guilty of misspeaking and of putting my foot in […]Read More Defining
I liked the article that is being criticized in this report. It was telling one family’s story. However, this writer makes some very good points about the facts around someone being on disability. As a parent when you have a baby you have hopes and dreams for that child and what they may someday become. […]Read More The Washington Post just illustrated the biggest flaw in disability coverage
One of my children has had the terms “profound” and “severe” thrown around regarding the disability that he experiences. As a parent of a child labeled as such, I spend a lot of time in various meetings with the purpose of evaluating what he can and cannot do, how often and how well. I wonder […]Read More Worthy
The danger of an institutionalized mind is that a real life is very different. Risk. Vulnerability. Hope. You are human, and the reality of that is messy, glorious, heartbreaking, beautiful and sometimes just plain weird.Read More Deinstitutionalizing My Mind
Bad things happen. Turn on the news or look at social media and one can quickly ascertain that the world is not always a safe place. Unfortunately, people labeled as having an intellectual disability (IDD) are subjected to bad things at an alarming rate. As a parent of individuals who have been given this label, […]Read More Social Roles and Safety Nets
Recently there’s been a rash of news articles about “special needs proms” taking place across the country, one of which occurred in a church very close to my home. The news reports featured pictures of many young men and women, most of whom have a label of intellectual disability, dressed to the nines, and having […]Read More Not-So-Special Events: From Benevolence to Belonging